About Rett Syndrome<\/a><\/p>\n<p><a href=https://givebutter.com/"https:////reverserett.org//cures///">Roadmap to Cures<\/a><\/p>\n<p><a href=https://givebutter.com/"https:////facebook.com//people//Team-Twinsley-Our-Rett-Syndrome-Journey//61574126129016///">Follow Our Journey on Facebook<\/a><\/p>","donate_button_label":"Donate","timezone":"America\/New_York","goal":0,"id":429566,"raised_percentage":0,"raised":"0.00","subtitle":"Lace up your sneakers and help us raise funds to cure Rett syndrome.","title":"Quest for a Cure Walkathon 2025","type":"fundraise","url":"https:\/\/givebutter.com\/Quest2025","cover_photo":"https:\/\/givebutter.com\/cdn-cgi\/image\/width=1200\/https:\/\/givebutter.s3.amazonaws.com\/media\/X6aGQAD3wfLtTQecNtIx2pyj7elxJma3ZVyWHDTl.png","settings":[{"active":true,"code":500,"id":5210707,"name":"disable_team_fundraising","type":"boolean","value":true},{"active":true,"code":208,"id":5210708,"name":"use_actual_cover_size","type":"boolean","value":true},{"active":true,"code":205,"id":5210709,"name":"theme_color","type":"string","value":"#846BF5"},{"active":false,"code":502,"id":5210710,"name":"disable_public_join_button","type":"boolean","value":false},{"active":true,"code":505,"id":5210711,"name":"custom_join_text","type":"string","value":"CREATE A PAGE"},{"active":false,"code":100,"id":5210712,"name":"meta_title","type":"string","value":null},{"active":true,"code":101,"id":5210713,"name":"meta_description","type":"string","value":"In honor of Claire and Lura, and the future we dream they can have, we ask you to help us make our dream a reality."},{"active":false,"code":300,"id":5210714,"name":"disable_donations","type":"boolean","value":false},{"active":true,"code":302,"id":5210715,"name":"require_donor_phone","type":"boolean","value":true},{"active":true,"code":309,"id":5210716,"name":"require_address","type":"boolean","value":true},{"active":false,"code":321,"id":5210717,"name":"disable_company_field","type":"boolean","value":false},{"active":false,"code":313,"id":5210718,"name":"public_check_payments","type":"text","value":null},{"active":false,"code":369,"id":5210719,"name":"hide_other_option","type":"boolean","value":false},{"active":false,"code":301,"id":5210720,"name":"minimum_donation","type":"decimal","value":null},{"active":true,"code":358,"id":5210721,"name":"custom_donation_amounts","type":"App\\Casts\\Settings\\CustomDonationAmountsSetting","value":{"once":[{"value":1000,"description":"Road Warrior"},{"value":500,"description":"Super Stepper"},{"value":250,"description":"Walking Wonder"},{"value":100,"description":"Hero"},{"value":50,"description":"Friend"}],"monthly":[{"value":250},{"value":100},{"value":50},{"value":25},{"value":15},{"value":5}],"quarterly":[{"value":1000},{"value":500},{"value":250},{"value":100},{"value":50},{"value":25}],"yearly":[{"value":2500},{"value":1000},{"value":500},{"value":250},{"value":100},{"value":50}]}},{"active":true,"code":312,"id":5210722,"name":"display_frequencies","type":"json","value":["once","monthly"]},{"active":true,"code":311,"id":5210723,"name":"default_frequency","type":"string","value":"once"},{"active":false,"code":305,"id":5210724,"name":"disable_recurring","type":"boolean","value":false},{"active":true,"code":308,"id":5210725,"name":"hide_fund","type":"boolean","value":true},{"active":false,"code":307,"id":5210726,"name":"default_fund","type":"string","value":null},{"active":true,"code":306,"id":5210727,"name":"thank_you_message","type":"text","value":"<p>Thank you very much for your donation to the Rett Syndrome Research Trust (RSRT).<br><br>I assure you that your gift will be used with maximum efficiency to move us closer to profoundly changing the lives of all who struggle with Rett syndrome. Our momentum towards achieving that is greater than ever before. Multiple gene therapy clinical trials are underway, with early observations showing promising results. These trials are possible because of discoveries made by RSRT-supported researchers and thanks to our community of Rett families and donors who care so much about our outcomes.<\/p>\n<p>I&rsquo;m also excited to tell you that in 2024 RSRT launched a four-year, $40 million initiative, <em>Roadmap to Cures<\/em><em>,<\/em> to advance three more genetic medicines, beyond the current gene therapies, to clinical trials by 2028. It&rsquo;s absolutely critical to curing this disorder that we take multiple shots on goal, which is exactly what <em>Roadmap to Cures<\/em> makes happen. Your donation helps fuel this bold initiative.&nbsp; <br><br>I made a promise to my daughter that I won't rest until we have a life-changing genetic medicine for Rett. I don't intend to break that promise. Thank you so much for helping us.<br><br>Sincerely,<br><br>Monica Coenraads<br>Chief Executive Officer<br><br>P.S. [US Donors] The Rett Syndrome Research Trust is a 501(c)(3) non-profit (EIN 26-0687439). Your gift is a charitable contribution and no goods or services have been exchanged.<\/p>"}],"event":null,"account_name":"Rett Syndrome Research Trust","account_logo":"https:\/\/givebutter.s3.amazonaws.com\/profiles\/EYLldWWz80SoLeW7SEBr03lEKQu7uPVBbOnbskBP.png"},{"account_id":179535,"active":true,"creator_name":"Rett Syndrome Research Trust","description":"<h2>Thank you so much for your support<\/h2>\n<p><img src=https://givebutter.com/"https:////givebutter.s3.amazonaws.com//uploads//OmTjrm2lmVOUszqf5axdjxNCyTRS6jtVXPQYXoUD.jpg/" alt=\"\" width=\"1048\" height=\"838\" data-image-failed=\"false\"><\/p>\n<p>Since it was first held ten years ago, we are so proud and grateful to say that Reverse Rett Chicago has raised over $3 million for the Rett Syndrome Research Trust. This funding has had a remarkable impact. Clinical trials in gene therapy are now underway and showing initial promise. RSRT aims to have three other genetic approaches in clinical trials by 2028. Although we are not holding our event this year, your support is more important than ever. We must build on the exciting research momentum to change Marissa Zelinger&rsquo;s life and the lives of 350,000 others who struggle so bravely with this devastating disorder.&nbsp;<\/p>\n<p><a href=https://givebutter.com/"https:////reverserett.org//about-rett-syndrome///">About Rett Syndrome<\/a><\/p>\n<p><a href=https://givebutter.com/"https:////reverserett.org//cures///">Roadmap to Cures<\/a><\/p>","donate_button_label":"Donate","timezone":"America\/New_York","goal":null,"id":398414,"raised_percentage":0,"raised":"204751.00","subtitle":"We hope that even without a gala event this year that you will continue to support the cause of finding a cure for Rett.","title":"Reverse Rett Chicago 2025","type":"fundraise","url":"https:\/\/givebutter.com\/RRCHI25","cover_photo":"https:\/\/givebutter.com\/cdn-cgi\/image\/width=1200\/https:\/\/givebutter.s3.amazonaws.com\/media\/hJzkPjVnoORDwy6Td4VhrVYIGBMyEinJyG1LqMsC.png","settings":[{"active":true,"code":500,"id":4917522,"name":"disable_team_fundraising","type":"boolean","value":true},{"active":true,"code":208,"id":4917523,"name":"use_actual_cover_size","type":"boolean","value":true},{"active":false,"code":205,"id":4917524,"name":"theme_color","type":"string","value":null},{"active":false,"code":502,"id":4917525,"name":"disable_public_join_button","type":"boolean","value":false},{"active":true,"code":505,"id":4917526,"name":"custom_join_text","type":"string","value":"CREATE A PAGE"},{"active":false,"code":100,"id":4917527,"name":"meta_title","type":"string","value":null},{"active":true,"code":101,"id":4917528,"name":"meta_description","type":"string","value":"In honor of Claire and Lura, and the future we dream they can have, we ask you to help us make our dream a reality."},{"active":false,"code":300,"id":4917529,"name":"disable_donations","type":"boolean","value":false},{"active":true,"code":302,"id":4917530,"name":"require_donor_phone","type":"boolean","value":true},{"active":true,"code":309,"id":4917531,"name":"require_address","type":"boolean","value":true},{"active":false,"code":321,"id":4917532,"name":"disable_company_field","type":"boolean","value":false},{"active":false,"code":313,"id":4917533,"name":"public_check_payments","type":"text","value":null},{"active":false,"code":369,"id":4917534,"name":"hide_other_option","type":"boolean","value":false},{"active":false,"code":301,"id":4917535,"name":"minimum_donation","type":"decimal","value":null},{"active":true,"code":358,"id":4917536,"name":"custom_donation_amounts","type":"App\\Casts\\Settings\\CustomDonationAmountsSetting","value":{"once":[{"value":15000,"description":"Presenting Donor"},{"value":10000,"description":"Diamond Donor"},{"value":7500,"description":"Platinum Donor"},{"value":5000,"description":"Gold Donor"},{"value":2500,"description":"Silver Donor"},{"value":1000,"description":"Bronze Donor"}],"monthly":[{"value":250},{"value":100},{"value":50},{"value":25},{"value":15},{"value":5}],"quarterly":[{"value":1000},{"value":500},{"value":250},{"value":100},{"value":50},{"value":25}],"yearly":[{"value":2500},{"value":1000},{"value":500},{"value":250},{"value":100},{"value":50}]}},{"active":true,"code":312,"id":4917537,"name":"display_frequencies","type":"json","value":["once","monthly"]},{"active":true,"code":311,"id":4917538,"name":"default_frequency","type":"string","value":"once"},{"active":false,"code":305,"id":4917539,"name":"disable_recurring","type":"boolean","value":false},{"active":true,"code":308,"id":4917540,"name":"hide_fund","type":"boolean","value":true},{"active":false,"code":307,"id":4917541,"name":"default_fund","type":"string","value":null},{"active":true,"code":306,"id":4917542,"name":"thank_you_message","type":"text","value":"<p>Thank you very much for your donation to the Rett Syndrome Research Trust (RSRT).<br><br>I assure you that your gift will be used with maximum efficiency to move us closer to profoundly changing the lives of all who struggle with Rett syndrome. Our momentum towards achieving that is greater than ever before. Multiple gene therapy clinical trials are underway, with early observations showing promising results. These trials are possible because of discoveries made by RSRT-supported researchers and thanks to our community of Rett families and donors who care so much about our outcomes.<\/p>\n<p>I&rsquo;m also excited to tell you that in 2024 RSRT launched a four-year, $40 million initiative, <em>Roadmap to Cures<\/em><em>,<\/em> to advance three more genetic medicines, beyond the current gene therapies, to clinical trials by 2028. It&rsquo;s absolutely critical to curing this disorder that we take multiple shots on goal, which is exactly what <em>Roadmap to Cures<\/em> makes happen. Your donation helps fuel this bold initiative.&nbsp; <br><br>I made a promise to my daughter that I won't rest until we have a life-changing genetic medicine for Rett. I don't intend to break that promise. Thank you so much for helping us.<br><br>Sincerely,<br><br>Monica Coenraads<br>Chief Executive Officer<br><br>P.S. [US Donors] The Rett Syndrome Research Trust is a 501(c)(3) non-profit (EIN 26-0687439). Your gift is a charitable contribution and no goods or services have been exchanged.<\/p>"}],"event":null,"account_name":"Rett Syndrome Research Trust","account_logo":"https:\/\/givebutter.s3.amazonaws.com\/profiles\/EYLldWWz80SoLeW7SEBr03lEKQu7uPVBbOnbskBP.png"},{"account_id":179535,"active":true,"creator_name":"Rett Syndrome Research Trust","description":"<p>Identical twins Claire and Lura were born in January 2024. They were a little early and a little small but otherwise healthy and very happy. Around 6 months old, we began to notice that they were not rolling or sitting up as expected so we embarked on a months long journey of therapies, doctor appointments, and genetic testing culminating with a diagnosis we never saw coming &ndash; &ldquo;Your children have Rett Syndrome.&rdquo;<\/p>\n<p>The Twinsleys, as the pair is affectionately known, are the biggest joy in their parents&rsquo; lives. They love silly sounds, going on walks, and spending time with all of their family and friends. They especially enjoy trying (aka licking) as many new foods as possible. Their loving spirit is felt by everyone they meet.<\/p>\n<p>We can only dream of the amazing future these two will have, but because Rett Syndrome has robbed them of their mobility, speech, and independence, it remains just that &ndash; a dream. Fortunately, this dream is being worked on by a research trust founded by a Rett mom. This amazing team is on a mission to use science to develop a cure. Very promising gene therapies are on the horizon but require regular funding. Most, if not all, funding used for these studies is from private sources.<\/p>\n<p>So, in honor of Claire and Lura and the future we dream they can have, we ask you to help us make our dream a reality by donating to the RSRT today.<\/p>\n<p><strong>Learn more:<\/strong><\/p>\n<p><a href=https://givebutter.com/"https:////reverserett.org//about-rett-syndrome///">About Rett Syndrome<\/a><\/p>\n<p><a href=https://givebutter.com/"https:////reverserett.org//cures///">Roadmap to Cures<\/a><\/p>\n<p><a href=https://givebutter.com/"https:////facebook.com//people//Team-Twinsley-Our-Rett-Syndrome-Journey//61574126129016///">Follow Our Journey on Facebook<\/a><\/p>","donate_button_label":"Donate","timezone":"America\/New_York","goal":20000,"id":394206,"raised_percentage":83,"raised":"16724.00","subtitle":"For Claire and Lura, and the future we dream they can have, we ask you to help us make our dream a reality.","title":"A Cure for Claire & Lura","type":"fundraise","url":"https:\/\/givebutter.com\/ClaireLura","cover_photo":"https:\/\/givebutter.com\/cdn-cgi\/image\/width=1200\/https:\/\/givebutter.s3.amazonaws.com\/media\/mncZYdVDTnpsgMbEARuuD88GBogpqyo8fuxTpsld.png","settings":[{"active":true,"code":500,"id":4882002,"name":"disable_team_fundraising","type":"boolean","value":true},{"active":true,"code":208,"id":4882035,"name":"use_actual_cover_size","type":"boolean","value":true},{"active":false,"code":205,"id":4882050,"name":"theme_color","type":"string","value":null},{"active":false,"code":502,"id":4882071,"name":"disable_public_join_button","type":"boolean","value":false},{"active":true,"code":505,"id":4882072,"name":"custom_join_text","type":"string","value":"CREATE A PAGE"},{"active":false,"code":100,"id":4882087,"name":"meta_title","type":"string","value":null},{"active":true,"code":101,"id":4882088,"name":"meta_description","type":"string","value":"In honor of Claire and Lura, and the future we dream they can have, we ask you to help us make our dream a reality."},{"active":false,"code":300,"id":4882089,"name":"disable_donations","type":"boolean","value":false},{"active":true,"code":302,"id":4882090,"name":"require_donor_phone","type":"boolean","value":true},{"active":true,"code":309,"id":4882091,"name":"require_address","type":"boolean","value":true},{"active":false,"code":321,"id":4882092,"name":"disable_company_field","type":"boolean","value":false},{"active":false,"code":313,"id":4882093,"name":"public_check_payments","type":"text","value":null},{"active":false,"code":369,"id":4882105,"name":"hide_other_option","type":"boolean","value":false},{"active":false,"code":301,"id":4882106,"name":"minimum_donation","type":"decimal","value":null},{"active":true,"code":358,"id":4882107,"name":"custom_donation_amounts","type":"App\\Casts\\Settings\\CustomDonationAmountsSetting","value":{"once":[{"value":1000,"description":"Team Twinsley Super Star"},{"value":500,"description":"Team Twinsley Hero"},{"value":250,"description":"Team Twinsley Champion"},{"value":100,"description":"Team Twinsley Advocate"},{"value":50,"description":"Team Twinsley Friend"}],"monthly":[{"value":250},{"value":100},{"value":50},{"value":25},{"value":15},{"value":5}],"quarterly":[{"value":1000},{"value":500},{"value":250},{"value":100},{"value":50},{"value":25}],"yearly":[{"value":2500},{"value":1000},{"value":500},{"value":250},{"value":100},{"value":50}]}},{"active":true,"code":312,"id":4882108,"name":"display_frequencies","type":"json","value":["once","monthly"]},{"active":true,"code":311,"id":4882109,"name":"default_frequency","type":"string","value":"once"},{"active":false,"code":305,"id":4882110,"name":"disable_recurring","type":"boolean","value":false},{"active":true,"code":308,"id":4882112,"name":"hide_fund","type":"boolean","value":true},{"active":false,"code":307,"id":4882113,"name":"default_fund","type":"string","value":null},{"active":true,"code":306,"id":4882183,"name":"thank_you_message","type":"text","value":"<p>Thank you very much for your donation to the Rett Syndrome Research Trust (RSRT).<br><br>I assure you that your gift will be used with maximum efficiency to move us closer to profoundly changing the lives of all who struggle with Rett syndrome. Our momentum towards achieving that is greater than ever before. Multiple gene therapy clinical trials are underway, with early observations showing promising results. These trials are possible because of discoveries made by RSRT-supported researchers and thanks to our community of Rett families and donors who care so much about our outcomes.<\/p>\n<p>I&rsquo;m also excited to tell you that in 2024 RSRT launched a four-year, $40 million initiative, <em>Roadmap to Cures<\/em><em>,<\/em> to advance three more genetic medicines, beyond the current gene therapies, to clinical trials by 2028. It&rsquo;s absolutely critical to curing this disorder that we take multiple shots on goal, which is exactly what <em>Roadmap to Cures<\/em> makes happen. Your donation helps fuel this bold initiative.&nbsp; <br><br>I made a promise to my daughter that I won't rest until we have a life-changing genetic medicine for Rett. I don't intend to break that promise. Thank you so much for helping us.<br><br>Sincerely,<br><br>Monica Coenraads<br>Chief Executive Officer<br><br>P.S. [US Donors] The Rett Syndrome Research Trust is a 501(c)(3) non-profit (EIN 26-0687439). Your gift is a charitable contribution and no goods or services have been exchanged.<\/p>"}],"event":null,"account_name":"Rett Syndrome Research Trust","account_logo":"https:\/\/givebutter.s3.amazonaws.com\/profiles\/EYLldWWz80SoLeW7SEBr03lEKQu7uPVBbOnbskBP.png"}]" data-per-page="https://givebutter.com/3" data-resource-id="4TSWFTvLJhQvshdj" data-scope="active" data-subtitle="Happening Now" data-title="Fundraisers" data-type="account" >